Miss SA helps break the TB stigma

22 March 2019 | Story Carla Bernardo. Photos Michael Hammond. Read time 8 min.
Miss SA Tamaryn Green shares her personal battle with TB with fellow UCT medical students.
Miss SA Tamaryn Green shares her personal battle with TB with fellow UCT medical students.

Six months after revealing that she had beaten tuberculosis (TB), current Miss South Africa (SA) Tamaryn Green returned to the place where it all began: the University of Cape Town (UCT).

At a talk hosted by SHAWCO Health, TB Proof and UCT’s Faculty of Health Sciences (FHS), Green, who was a sixth-year medical student when she won her title, recounted her TB journey, the fear of people knowing her status and of using her Miss SA platform to help #BreakTheStigma.

Compared to students in other faculties, UCT medical students are most at risk of contracting TB. The faculty’s Student Development and Support Committee estimates that seven FHS students contract TB every year.

In June 2015, Green was one of those seven. She was diagnosed with pulmonary TB, associated with tuberculous lymphadenitis, which is a TB infection of the lymph nodes in the neck.

A few days after a lymph node began swelling in her neck, Green went to the doctor. With no obvious TB symptoms such as coughing, night sweats or weight loss, and inconclusive tests, she underwent an incisional biopsy. Finally, she was sent to a pulmonary specialist who delivered what was then devastating news: Green had contracted the potentially fatal disease.

“Surprisingly, the first thing that popped up in my mind was, ‘Don’t tell anyone’,” the beauty queen revealed.

“It still amazes me that that was the first thing that came up.”

Because she wasn’t coughing, doctors gave her the green light to return to campus. She took her medicine as prescribed, but after two months the lymph node not only remained enlarged but had grown to the size of a golf ball.

Unbearable pain

The pain became unbearable and during one of her classes, Green approached the Department of Obstetrics and Gynaecology’s Dr Chivaugn Gordon. She showed Gordon the lymph node and within an hour, they had contacted pulmonologist Dr Greg Calligaro.

 

“Who would ever think a Miss SA would have TB?”

Calligaro found a build-up of pus in the surgery wound caused by a secondary infection. To treat it, Green had to visit Groote Schuur Hospital every second day to have the wound drained. She’d leave campus, undergo the procedure and immediately return to classes, afraid of falling behind academically.

But then she fell ill again, this time with hepatitis, and was forced to apply for a short leave of absence. Finally, in December 2015, she was cured.

“And then I said I am never talking about it again,” said Green.

Before falling ill, she had entered Miss SA. But her health forced her to withdraw her application. Three years later, she applied again. The rest is history.

While deciding on her campaign for her reign, Green’s fight against TB kept popping up, despite her efforts to forget it. 

Even though she knew it would be powerful and relevant to South Africa, she feared the public’s reaction.

Miss SA helps break the TB stigma
Miss SA Tamaryn Green answers questions about TB. Looking on are (from left) Assoc Prof Rudzani Muloiwa, FHS Student Development and Support Committee chairperson Dr Ayanda Gcelu and UCT student and TB survivor Phumeza Tisile.

Eventually, after confiding in a Miss SA organiser, Green pitched her campaign to the pageant’s board. Without hesitation they gave their support.

Campaign and community

The Miss SA platform proved to be a great fit for Green’s #BreakTheStigma campaign, which launched in August last year.

“Who would ever think a Miss SA would have TB? Who would think she would want to talk about something that was ugly?” she said.

“This is the perfect platform to inform people who don’t know about [TB].”

The Miss South Africa organisation published this video as part of Tamaryn Green’s #BreakTheStigma campaign.

The response has been overwhelming. TB survivors have reached out, Green has become a World Health Organisation and national Department of Health ambassador, and in September 2018 she addressed the United Nations’ first-ever high-level panel on TB.

Her plan now is to expand the campaign to help break the stigma around other diseases – and to take it to communities.

Phumeza Tisile, an extensively drug-resistant (XDR) TB survivor and UCT student, joined Green at the event in sharing her personal battle with tuberculosis. Tisile is deeply entrenched in community work.

In 2010, she started feeling ill and losing weight. She was diagnosed with “normal” TB and then multidrug-resistant (MDR) TB. She took her medication, but still her health declined.

Sometime after the MDR diagnosis, she awoke in hospital and headed to the bathroom. She flushed the toilet, but she couldn’t hear the running water. She rushed to speak to a nurse, but she couldn’t hear their response.

“The worst part was that I couldn’t hear my own voice,” Tisile recalled.

A doctor confirmed her worst fear: she was deaf, a side effect of the antibiotic kanamycin. She was also diagnosed with pre-XDR and prescribed new drugs.

A few months after the pre-XDR diagnosis, the drugs stopped working. Tisile returned to the doctor. This time, she was diagnosed with XDR TB, the deadliest form of the disease.

Miss SA helps break the TB stigma
Phumeza Tisile discusses fighting off the deadliest form of TB.

She had a mere 20% chance of survival. She was told to consult a priest and prepare her soul; there was no way she was going to survive.

But in 2013, against all odds and thanks to new drugs supplied by Doctors Without Borders, she was declared TB-free. And in 2015, she had cochlear implants and was able to hear again.

Now, she is studying and raising awareness about TB.

The class factor

Her work, as part of TB Proof, includes destigmatising all forms of TB and mobilising resources. She’s also hoping to enlist the help of faith leaders to dispel harmful myths and see nurses address patients by their names and not as “TB”, a common occurrence at clinics. She also intends tackling the issues of class and race as they pertain to TB.

Understanding the role of class is crucial to the fight against the disease, said Vaccines for Africa’s Associate Professor Rudzani Muloiwa.

 

“TB has got a class target; it affects mainly the poor.”

“TB has got a class target; it affects mainly the poor,” he said.

TB is a social disease and, for this reason, drugs have done little to control it. Thus, for Muloiwa, whatever scientific work is done must be “grounded in true and real humanity”.

Miss SA helps break the TB stigma
Assoc Prof Rudzani Muloiwa urges students to examine the socio-economic factors surrounding the spread of TB.

“If we are going to have any chance against TB, I suspect pretty much it’s not just the drugs; it’s how we change as a community and as a society to face this,” he said.

“Because unless we change the lives of the majority of our people, everyone will be at risk.”


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Students’ Health and Welfare Centres Organisation (SHAWCO)

 

The Students' Health and Welfare Centres Organisation (SHAWCO) runs various health and education programmes. Approximately 2 000 UCT students are involved.

The community partnership and social entrepreneurship programmes, that address inequality, are managed by 32 full-time and 5 part-time professional staff.

Operating in the Western and Eastern Cape, the health programme provides primary healthcare to 5 000 adults and children (annually) close to their homes, with fully equipped mobile clinics.

The education programme gives academic support and homework assistance to 1 300 learners weekly with structured education projects that help improve the academic ability of learners.

 

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SHAWCO: 75 years of giving back SHAWCO is celebrating its 75th anniversary with a fundraising drive to secure future efforts to promote healthcare and education in the community. 28 Feb 2018
A start that is more than a beginning SHAWCO’s Saturday School aims to improve matric results and assist youngsters from under-resourced schools to gain entrance to the tertiary education system. 02 Feb 2018
SHAWCO: celebrating 75 years of service SHAWCO is turning 75 and aims to raise R75 million to ensure the continued provision of healthcare, education and development services to the community. 23 Nov 2017
SHAWCO Health’s new president Fifth-year medical student James van Duuren is the newly appointed president of SHAWCO Health for 2018. 19 Oct 2017

 


 
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